Replies: 9
Views: 157
Last Post By: mommyoffour ON: Wed Sep 08, 2010 11:09 pm
Topic By: mommyoffour ON: Wed Sep 08, 2010 11:09 pm
i take high doses of codeine and i've also taken demerol before. neither really killed the pain they either made me sleepy and i pass out which = not much pain or they make me dopey and i don't care so much about the pain. medical marijuana has the same effect, puts my mind on other things instead of the pain.i've bugged my dr to give me stronger pain meds for years to no avail. but after reading here, they don't seem to work any better according to you guys. take care, sher

Replies: 8
Views: 52
Last Post By: mommyoffour ON: Wed Sep 08, 2010 10:56 pm
Topic By: mommyoffour ON: Wed Sep 08, 2010 10:56 pm
katie, i always say that it feels like my joints are loose or hypermobile before a flare, is this the popping your talking about? i think your the first person i've come across that experiences this too. neat! (well not really but you know what i mean) take care, sher

Replies: 3
Views: 19
Last Post By: mommyoffour ON: Wed Sep 08, 2010 10:47 pm
Topic By: mommyoffour ON: Wed Sep 08, 2010 10:47 pm
hi tim and welcome!
thats so strange that so many of us have the PR that likes to stay mainly on one side of our bodies. mine is my right side too. i've had PR for 11 or so years and have never had it affect my spine. my shoulders and hips flare alot and like k said, it sometimes feels like it's my back that hurts but that's mostly because of the over compensating.

do you have another condition that affects your back tim?
take care, sher

Replies: 1
Views: 5
Last Post By: mommyoffour ON: Wed Sep 08, 2010 10:40 pm
Topic By: mommyoffour ON: Wed Sep 08, 2010 10:40 pm
welcome to the site! sorry you had to find us this way though. you'll get the support you need here, everyone's great.take care, sher

Replies: 1
Views: 7
Last Post By: mommyoffour ON: Wed Sep 08, 2010 10:38 pm
Topic By: mommyoffour ON: Wed Sep 08, 2010 10:38 pm
i like satly things like crackers, flat ginger ale, and mint tea. well i don't really "like" them but they are good nausea foods.i hope you enjoy the site and gain lots of info from it. good luck with your PR journey! take care, sher

Replies: 29
Views: 201
Last Post By: mommyoffour ON: Wed Sep 08, 2010 10:34 pm
Topic By: mommyoffour ON: Wed Sep 08, 2010 10:34 pm
thanks ladies for your kind words, they really mean alot! i'm still in my funk, but i'm sure it will pass when the flare passes. chin up, chest out, i can do this yes k i was quite surprised to read the shitty bit too. lol yeah katie, i tend to be hard on myself. stupid perfectionism take care, sher

Replies: 1
Views: 5
Last Post By: mommyoffour ON: Wed Sep 08, 2010 10:40 pm
Topic By: roxdreamer2 ON: Wed Sep 08, 2010 10:02 pm
Hello--
I have been on this website before when I was first diagnosed with PR a few years back. My rheumy thinks I have gone into full blown RA now....although my flares are still consistent with PR. Having a really bad flare in my right wrist right now. I just needed support, so now have joined here. Thanks

Replies: 1
Views: 7
Last Post By: mommyoffour ON: Wed Sep 08, 2010 10:38 pm
Topic By: Ayoba ON: Wed Sep 08, 2010 5:48 pm
My name is mary and this is the first time I am posting on the forum I am a frequent visitor and have found the forum to be a mine of information and can relate to almost everyone and their experiances
I had my first dose of methotrexate yesterday and today have been feeling nauseas any advice out there on how to avoid the nausea or how to lessen it.
All wierd and wonderful ideas will be welcome

Replies: 6
Views: 172
Last Post By: katie ON: Wed Sep 08, 2010 3:51 pm
Topic By: katie ON: Wed Sep 08, 2010 3:51 pm
!

Replies: 3
Views: 19
Last Post By: mommyoffour ON: Wed Sep 08, 2010 10:47 pm
Topic By: Kanderson ON: Wed Sep 08, 2010 2:36 pm
Hi and welcome

my right side is also bad, however for the past few weeks left side is being it.

You can get PR in the spine, but it may originate from another joint such as the hips when you are compensating for sore joints. Also I have a fused lower spine which doesnt help matters.

Hope you find the site helpful, ask away if you need

K

Replies: 3
Views: 19
Last Post By: mommyoffour ON: Wed Sep 08, 2010 10:47 pm
Topic By: Marty ON: Wed Sep 08, 2010 6:37 am
I've never heard of PR affecting the spine but I think I had it attack my ribs. It didn't hurt too much until I sneezed. Then it was enough to make me scream. Anatomically I think the ribs have a lot of connective tissue which is susceptible to PR pain. I'm not sure about the spine connective tissue.

Replies: 3
Views: 19
Last Post By: mommyoffour ON: Wed Sep 08, 2010 10:47 pm
Topic By: timadams ON: Wed Sep 08, 2010 3:57 am
Hi: I'm Tim. I was diagnosed one yr. ago. So far it hasn't changed my lifestyle, but for a few hours at a time. I am keeping a log of my attacks or "flares" My Doc is recommending methotrexate, but I am trying to avoid drugs until I have to. Pain is ok most opf the time but occasionally off the charts.

I am really glad I found this site. I think I have learned more here that my Dr. knows. Thank you!!! to those of you who donote so much time to it.

My attacks are 80% on the right side of my body in fingers, ankle, jaw, knee, shoulder and elbow. Some joints are often attacked, others rarely. u big fear is that it will attack my back. Does anybosy have attacjks of the joints in the spine?

Thanks

Tim Adams, Midland Michigan, USA

Replies: 29
Views: 201
Last Post By: mommyoffour ON: Wed Sep 08, 2010 10:34 pm
Topic By: katie ON: Wed Sep 08, 2010 1:07 am
Sher, I know how you feel, and random things are running through my head. When I was first diagnosed with PR the doc said that it would be more treatable if it were RA. I didn't last on mtx, the dose had to be raised to the point that it was making me too sick. There is a new drug they're advertising here that enhances mtx, I've only seen the commercial a couple times so I don't remember the name.

One of the new drugs I was thinking of is Actemra but I see that it's considered a biologic. http://www.webmd.com/rheumatoid-arthrit ... ons?page=2 Researching anything is empowering and good for getting out of funks. Facts are helpful for educating hubbies, too. You are in this together and the more he knows what your family is dealing with the better. You should have heard me one time (well, more than one) when I was wailing at my husband that he didn't sign on for this and he should find a wife that didn't have all my problems. The funny thing is, I have a new friend with RA and she has done exactly the same thing. I bet we're not the only ones.

I know what you mean about wondering if your career ideas will ever happen. At my age that's not likely, but you need to keep your hopes up and think creatively about things you can do because there will likely be a breakthrough before you're too old to get something going. The rheumys have a site "Within Our Reach" raising fund because they think the time is right for an RA cure with proper funding. RA cure = big help for us, too. The other thing is that it takes all of us awhile to find our niche and your kids have only been in school...what... a week? I think you're being hard on yourself.

Replies: 8
Views: 52
Last Post By: mommyoffour ON: Wed Sep 08, 2010 10:56 pm
Topic By: katie ON: Tue Sep 07, 2010 11:42 pm
I crunch all the time, especially in my upper back around my shoulder blades. Popping is different, my joints pop before a flare. I suppose it's because the inflamation is starting to build but I don't really know. The rheumy doesn't seem to think it's a big deal.

Replies: 29
Views: 201
Last Post By: mommyoffour ON: Wed Sep 08, 2010 10:34 pm
Topic By: Kanderson ON: Tue Sep 07, 2010 9:30 pm
Sher

everything happens for a reason.........you are being tested now maybe because your needed to be strong to support someone else through something at some point in your life....who knows? I know it feels shitty just now....( can I say that ?) However, on the brighter side.....you wouldnt have contributed to this forum your valuable insight if you hadnt been ill. Weak I know........but im trying to help you see the positive <HUGS>

K