Palindromic Rheumatism

not used to this glad there are people out there who understand,i dont look ill and people who havent got it think youre just a moaner

i have numbness in my litle finger and up the side my doc says it could be a trapped nerve

does anyone have numbness or have had trigger finger

I'm just diagnosed with PR. My rumitologist told me to check out the disease online. I found this site right off. Glad I did. I'm so glad to finally have a name for this stuff. I know it sounds stupid but I really thought I was going nuts and so did my friends and family.

im a new member just been diagnosed a year ago with pr

Just found this site, can't stop reading, finally an explanation that fits!

should i be seeing an improvement with sulfasalazine after 4 weeks

Hi i find alcohol helps when your having a laugh with your friends coz for a while you forget the pain !

Hi Shaun, in reply to your question, No...in my case, alcohol was more trouble than it was worth.

has anybody outthere? found that alcohol helps

Hi I am a new member. It has taken 2 years to get a diagnoses of sorts. I have been told by my consulant that I have RA, Ostero & PR. However I have had to do research myself in regards to all of these as my consulant is always too busy to spend too much time with each of his patients. I feel that I am being treated like a child, I am 52 years old.I wake every day after a troubled painful night aching all over and stiff. I am in constant pain all day. I now have to use a stick to get about. feeling depressed at the moment. Can people please point me in the right direction to find out more about my conditions.

My doctor put me on prednisone for a month, a little help but not tons. The things is with feeling better I could really tell when my pra attack hit, missed 2 days of work. My rummy now put me on hydroxychlor but the side effects scare me. So now I am on both until the hydrox kicks in anyone know about it?

new to the chat room forum. pain, swelling, redness and low-grade fever sent me to the ER. knee tapped-no inflammatory process, no gout, increased sed rate and crp....pra diagnosis. not sure indicin and plaquinil are the right combo. is it just trial and error? nice to know i'm not alone. this all star

Hi I am a new member and not a chat room user, I have had problems with my joints and pain moving around for the past four years or more. I visited the Hospital,Doctors etc and no real improvemnet until November of last year, after many blood tests that were normal the Doctor asked for another and did some different tests and low and behold PR. I have pains currently in my arms and fingers. my moods are very low? at times I think when or how can I get to feel better or get my moods to swing the other way for a couple of days. my familey try to understand but this is hard for them as it is for me. I am always looking for the time to go to bed! i just sleep and this is also a problems as I drive a lot with my work and this seems to be taking it's toll. I would welcome any help in how to over come this sleep problem and in general how to start looking forward to life and not another painful low day ahead. any hlep please.

im lost

Hi! I am a new member to this site, and I have also never been in a chat room, etc. of any kind in my life, so this is all new to me. i thought it might help to talk to others with this disease. I was diagnosed with pallindromic rheumatism 2 yrs. ago., but I have a severe variant of it. I never just have flares. Mine just moves from joints to muscles to soft tissue without ever going away. I also run a high fever (anywhere from 101-104) every time it moves to a different place. Does anyone else have this variant of it? This has practically destroyed my life. I have been an inpatient medical coder for 20 yrs., so I am very familiar with disease processes, etc. The hospital I worked at forced me to go on long term disability from my job because I could not function at work anymore. When I wake up every morning, the first thing I do is assess what body part is affected for the day, and try nto get out of bed. Some days I can't walk at all, other days I can't use my arms hands, or fingers, other days I can't sit up by myself or get dressed. On a rare occasion it has even affected my diaphragm muscles and soft tissue ,making breathing difficult. I would really love to hear how other people are handling coping with this disease. I know for a fact that we all are very tough individuals for everything we've been through. I know quite a bit about the clinical aspects of pallindromic rheumatism, and how the World Health Organization views it, but that's not the same as seeing how others live with it. Anyway,thanks for listening. montana2arizona

Also, I wanted to add that I plan on seeking hyperbaric oxygen therapy as it has anti-bacterial, anti-viral and anti-fungal affects.

I have been officially diagnosed with palindromic syndrome. I have pictures of my hand and knees and symptoms which seem very much like the people on this forum. My symptoms progressed to affect me neurologically and an infectious disease doctor ordered a lyme antibody test which fortunately for me came out positive. I understand that the testing for lyme disease is unreliable. I am currently on IV antibiotic therapy with an antibiotic which can penetrate the blood brain barrier. I am traveling out of state to visit a lyme literate doctor for more extended treatment. I urge you to please google lyme disease and all the controvery surrounding it. There is a fairly new documentary called "Under Our Skin" that is excellent and eye opening. There is a theory that lyme can mimic many autoimmune diseases. This is because when the spirochete sheds its wastes products our immune system attacks the foreign debris. Ginny

Hi all, mightmo here, pleased to find fellow PA sufferers.

Hello All,mightymo here,

hello